Chemo Education

[Ken Heaton (Salazar)]

Your plan sounds nearly identical to my mother's schedule. I wish I could send her out to live on your isolated island.
She's in Florida where apparently the virus is a hoax.

Florida, yesterday's numbers:

Total 32,846
Recovered 686 0
Deaths 1,171

Twice as many deaths as recoveries, some hoax.

[kimbottles]

I was going to start growing out my mullet to be like Tim, But............

[kimbottles]

Discussing with Bob Perry his up coming interview today on SA at 11am PDT.
I am not sure how we listen in, I expect we go to the front page and look around for directions.
Scot and Bob in the same conversation...this should be interesting.

[BeauV]

Kim, you don't look half-bad with that hair cut. It'll be easy to maintain!

[Jamie]

Yeah, you're lucky - you have a good head.

[kimbottles]

Kim, you don't look half-bad with that hair cut. It'll be easy to maintain!

Not a cut! More like fallout! I go outside and brush my head and it looks like snow fall!

Side effects are getting slightly better today, last several days were rough.

Losing weight, need to eat more protein. (Fat causes bad heartburn.)

Only 14 more treatments until we switch to radiation.

Am I have fun or what!!?

[Charlie]

Kim, you don't look half-bad with that hair cut. It'll be easy to maintain!

Not a cut! More like fallout! I go outside and brush my head and it looks like snow fall!

Side effects are getting slightly better today, last several days were rough.

Losing weight, need to eat more protein. (Fat causes bad heartburn.)

Only 14 more treatments until we switch to radiation.

Am I have fun or what!!?

Slow and steady, Kim. Sending positive vibes your way.

[LarryHoward]

Keep the faith.

Good looking head.

"Eat More Chicken"

Don't eat bats.

[kimbottles]

Yeah, you're lucky - you have a good head.

Well at least not a bad shape........I now look like my father, his brother and both our sons.

[LarryHoward]

Yeah, you're lucky - you have a good head.

Well at least not a bad shape........I now look like my father, his brother and both our sons.

Fine company for certain.

[JoeP]

I'm worried Kim, you're starting to look like my grandfather.

[Benno von Humpback]

Welcome to the club.

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[kdh]

As someone with a lot of hair and who hasn't gotten a haircut in 3 months, hair is overrated.

When I was treated for Hodgkins my chest radiation field included just the the bottom half of my head. Reverse male pattern baldness. Quite odd looking.

[kimbottles]

So now I have a DVT and I am on blood thinners. Didn’t expect that!!

This breast cancer thing is just an adventure after adventure after adventure........

I will have to say that the staff at Kaiser Permanente has been wonderful. Except for our male Oncologist, they have all been women and just down right pleasant to work with. The ultra sound technician gal who found the DVT was even named “Kim”. We bonded immediately and she showed me everything she was doing. She even “unofficially” showed me the DVT on the screen before the Doctor showed it to me “officially”.

Yesterday the AMS team (anticoagulation clinic) transitioned me from self injected enoxaparin (LOVENOX) to oral rivaroxaban (XARELTO).

Now I have 18 pre-filled syringes of the injectable stuff which apparent even though sealed can not be taken back. I don’t care about the money, but would love to get them into the hands of someone who could use them.

Maybe Drs Without Borders? Who do you give medicine to when you don’t need it anymore and it is expensive perfectly good meds?

[Benno von Humpback]

So now I have a DVT and I am on blood thinners. Didn’t expect that!!

This breast cancer thing is just an adventure after adventure after adventure........

I will have to say that the staff at Kaiser Permanente has been wonderful. Except for our male Oncologist, they have all been women and just down right pleasant to work with. The ultra sound technician gal who found the DVT was even named “Kim”. We bonded immediately and she showed me everything she was doing. She even “unofficially” showed me the DVT on the screen before the Doctor showed it to me “officially”.

Yesterday the AMS team (anticoagulation clinic) transitioned me from self injected enoxaparin (LOVENOX) to oral rivaroxaban (XARELTO).

Now I have 18 pre-filled syringes of the injectable stuff which apparent even though sealed can not be taken back. I don’t care about the money, but would love to get them into the hands of someone who could use them.

Maybe Drs Without Borders? Who do you give medicine to when you don’t need it anymore and it is expensive perfectly good meds?

Sorry to hear about the DVT, but I'm glad they caught it and are treating it aggressively. Wish I knew what to do with the syringes.

[LarryHoward]

Yep. Medicines thrown away are almost criminal, given the cost and the inability of some patients to pay for them. Some cities have "street clinics" that are often sponsored by churches in low income neighborhoods that will quietly accept unused and sealed meds.

When my father died, Hospice sent out a nurse to confirm his death. While waiting for the mortuary pickup, we sat with her in the living room counting and destroying all of the meds they had provided. Probably a couple of thousand dollars at retail but she was required to destroy every thing that had not been used. My sister (CNP and active volunteer at a couple of clinics) might have suggested we should have hidden a good portion of the "use as needed" drugs and somehow have a box anonymously dropped off at a clinic. Non an approved option and certainly of questionable legality.

[SemiSalt]

I had the same experience with unused meds. I dropped Ibrutinib when I had my pacemaker implanted which was just after we got a new month's supply. Nothing much useful to do with it.

I tell myself that it's expensive mostly because it's burdened with R&D costs and because the drug companies use a "how much will they pay" pricing mode. The cost of producing the product is not actually so much.

[Olaf Hart]

Sorry to hear about the DVT Kim, the good news is you know you have got it..

Treatment these days is pretty straightforward, if inconvenient,

Thought you might be interested in this link on clotting factors and risks, I assume this is something to do with the chemo meds, but some people have underlying tendencies to form clots which may be modified.

Our family has the MTHFR thing, so always on guard.

https://labtestsonline.org.au/learning/ ... -disorders

[kimbottles]

They say the chemo port now installed in my upper right chest is a factor in getting the DVT.

[JoeP]

Now I have 18 pre-filled syringes of the injectable stuff which apparent even though sealed can not be taken back. I don’t care about the money, but would love to get them into the hands of someone who could use them.

Maybe Drs Without Borders? Who do you give medicine to when you don’t need it anymore and it is expensive perfectly good meds?

Try this site Kim:[url]https//www.remedichain.org[/url] or check with your clinic.

Glad they got the DVT in time!

[JoeP]

Now I have 18 pre-filled syringes of the injectable stuff which apparent even though sealed can not be taken back. I don’t care about the money, but would love to get them into the hands of someone who could use them.

Maybe Drs Without Borders? Who do you give medicine to when you don’t need it anymore and it is expensive perfectly good meds?

Try this site Kim:https://www.remedichain.org or check with your clinic.

Glad they got the DVT in time!

[kimbottles]

Thanks Joe!!

[JoeP]

Thanks Joe!!

My pleasure Kim.

[kimbottles]

Managing the side effects MUCH better this infusion.

Nothing interesting to report except the DVT seems to be responding to treatment OK.

[LarryHoward]

Excellent news.

[BeauV]

Well, it seems you’ve figured this out. I’m certain that this is a skill you wished you’d never developed. But, as is your way, you make the best of a bad lot. Well done!!

[kimbottles]

However: very, very tired.
Naps.
Not much energy.
Pretty much unproductive.

[LarryHoward]

However: very, very tired.
Naps.
Not much energy.
Pretty much unproductive.

All expected and allowed. Lack of productivity wears on you but your productivity for now is focused on attacking the disease and husbanding your strength for that.

[kimbottles]

However: very, very tired.
Naps.
Not much energy.
Pretty much unproductive.

All expected and allowed. Lack of productivity wears on you but your productivity for now is focused on attacking the disease and husbanding your strength for that.

It is really nice to have a Chemo mentor here Larry. Your support here and on the phone has been most appreciated. Thank you!

[Olaf Hart]

https://youtu.be/DxGyRzbW89Y